ARTICLE ON MDS

Cancer in itself is lonely but MDS is even moiré lonely. No support groups, no navigators, no one to tell you what happened to them.

It is so nebulous s- no stages

The chemo is so new can cause haring loss

Am on chemo forever

Wish for more definition – but life is uncertain

Do not even know how to pronounce much less spell until recently not even sure it was cancer.

Diarrhea the worst – very little nausea- but fatigue.

Start talking about bone marrow transplants and clinical trials – scary.

Worst is loneliness. Fortunately have friends and family support.

And cannot say I knew anyone who died of MDS!